Tag Archives: bioethics

Risk and bioethics at WCSJ2011 in Doha (from a European perspective)

The following article, by Swim board member Daniela Ovadia, has just come out in the newsletter of EUSJA.

European science journalism was represented at WCSJ 2011 in Doha also by two panelists from Italy: Fabio Turone, who produced a panel on the communication of risk, and myself, in charge of a session on bioethics.

Moderated by Wilson Da Silva, editor in chief of Cosmos, the most widely read science popularisation magazine in Australia, the panel on risk offered three very diverse points of view on the issue.

Nigeria’s Akin Jimoh, who is the anglophone coordinator for the SjCOOP mentoring program of the World Federation of Science Journalists, discussed about the many difficulties a reporter has to overcome when trying to involve the population of African countries in the debate on risk, difficulties summarised in the picture of two motorbike riders wearing ludicrous – but not uncommon – substitutes for the helmets mandated by the law.

The lively and entertaining contribution by former TV reporter David Ropeik, book author and instructor at Harvard, focused on the elements that contribute to make objective hazards more or less scary, which should be known and used with caution by media professionals: from trust to familiarity, from choice to uncertainty through the dualism between risk and benefit, natural and man-made and between catastrophic and chronic, and more. His extensive research on the perception of risk was recently summarised in the book “How Risky Is It, Really?: Why Our Fears Don’t Always Match the Facts”.

Finally Fabio Turone analysed the available medical litterature on the quality of health and specifically risk reporting, to stress the importance of providing lifelong training for science journalists by journalists, specifically to practice and reinforce a critical approach. He presented the existing attempts at establishing a stronger and more effective alliance among scientific institutions, health policy makers and the media professionals in which the latter are considered “professional equals”.

From left: David Ropeik, Fabio Turone, Akin Jimoh and the moderator Wilson Da Silva.

Bioethics is more and more important in health reporting. It’s harder and harder for a science journalist to separate opinion from scientific evidence in topics such as end of life decisions or the  assessment of consciousness and coma. The panel in Doha was composed by journalists from the US – Joe Palca, science correspondent from NPR, and Jon Cohen, correspondent with Science who acted as moderator – the Canadian bioethicist Eric Racine, from Mc Gill University in Montréal, and myself. Racine illustrated his research on media reporting in cases that have a strong bioethical angle, especially with regards with neurology and neuroscience. He discussed the media coverage of the Terry Schiavo case in American and British newspapers through the analysis of the language used to describe her medical history, the most common mistakes in reporting and the misunderstanding of the experts’ comments.

Joe Palca discussed the hypes and hopes of stem cell research in neurological diseases and raised the question of how to report such an important issue. Finally I summarized two important cases involving end-of-life decisions that were debated in Italy for many years: the case of Piergiorgio Welby (an ASL patient who asked to withdraw assisted ventilation) and the case of Eluana Englaro (a coma patient with many similarietis with the Schiavo’s story). The speech benefited from the work by Gianna Milano, an Italian colleague who followed both cases for many years but could not attend the Doha conference.

From left: Daniela Ovadia, Eric Racine, Jon Cohen and Joe Palca.

The final discussion on the role of science journalism in ethical and scientific controversies sparked a debate about the difference between informing and teaching. The majority declared that the role of journalists is to inform and not to teach nor to judge the experts’ or the families’ position. An interesting part of the discussion involved colleagues from Islamic countries, where the bioethics debate is still in its infancy but is an emerging issue.

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Deep brain stimulation in the media – Daniela Ovadia on Frontiers in Neuroscience

This perspective article written by SWIM board member Daniela Ovadia and Frédéric Gilbert on the peer-reviewed journal “Frontiers in integrative Neuroscience” proposes a new model for a more effective cooperation between the scientific community and the specialised journalists.

It’s certainly worth reading.

Deep brain stimulation in the media: over-optimistic portrayals call for a new strategy involving journalists and scientists in ethical debates

Frédéric Gilbert1 and Daniela Ovadia2,3*
  • 1 Ethics and Bionics/Nanomedicine, Australian Centre of Excellence for Electromaterials Science, Faculty of Arts, University of Tasmania, Launceston, Australia
  • 2 Zoe Agency for Science Information, Milan, Italy
  • 3 Department of Cognitive Neuropsychology, Niguarda Ca’ Granda Hospital, Milan, Italy

Deep brain stimulation (DBS) is optimistically portrayed in contemporary media. This already happened with psychosurgery during the first half of the twentieth century. The tendency of popular media to hype the benefits of DBS therapies, without equally highlighting risks, fosters public expectations also due to the lack of ethical analysis in the scientific literature. Media are not expected (and often not prepared) to raise the ethical issues which remain unaddressed by the scientific community. To obtain a more objective portrayal of DBS in the media, a deeper collaboration between the science community and journalists, and particularly specialized ones, must be promoted. Access to databases and articles, directly or through science media centers, has also been proven effective in increasing the quality of reporting. This article has three main objectives. Firstly, to explore the past media coverage of leukotomy, and to examine its widespread acceptance and the neglect of ethical issues in its depiction. Secondly, to describe how current enthusiastic coverage of DBS causes excessive optimism and neglect of ethical issues in patients. Thirdly, to discuss communication models and strategies to enhance media and science responsibility.
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